It is disappointing and disconcerting that patients may only have a limited understanding of diabetes, diabetic retinopathy and its treatment. A recent study exploring patients’ understanding of the risk factors, cause and controllability of their own diabetic retinopathy revealed considerable misunderstanding, gaps in knowledge and potentially damaging beliefs about the cause and treatment of diabetic retinopathy.
Focus groups and interviews were conducted with patients with diabetic retinopathy (DR)-nearly half of whom had severe proliferative DR-a serious complication. Most of these patients had also undergone laser treatment. At the conclusion of the study, patients were found to have had a reasonable understanding of the basic risk factors for DR, such as diabetes control, but they were less clear about specific risk factors such as blood pressure and lipid control.
Most patients attributed their DR either to poor diabetes control or to failings of the health care system, rather than having a basic understanding of the small blood vessel disease including circulatory and oxygen deprivation that results from the damaged blood vessels in the retina. Some patients believed that their DR was a result of health aspects beyond their control or environmental factors, whereas others were unsure about the cause.
Improving patients’ understanding of the major risk factors for DR as well as helping them have a better understanding of the causes of diabetic retinopathy and being able to grasp expectations of realistic outcomes of laser treatment may improve patients’ coping mechanisms, adaption to disease and ocular outcomes.
If you or someone you know has questions about diabetic retinopathy call The Eye Clinic of Texas, an affiliate of Houston Eye Associates, at 800-423-3937, visit The Eye Clinic of Texas or facebook.com/ecot.lasik to schedule an appointment.
The Eye Clinic of Texas is an affiliate of Houston Eye Associates, the largest ophthalmology clinic in the nation. We are a leading eye care practice serving the greater Houston, Galveston, League City and Texas City with offices at 1100 Gulf Freeway, Suite 114, League City, Texas 77573, 7111 Medical Center Drive, Suite 110, Texas City, Texas 77590 and 2302 Avenue P, Galveston, Texas 77550.